Dementia is not a single disease but a collection of symptoms that affect memory, thinking, and behaviour. In Australia, almost half a million people live with dementia, and this number is projected to double by 2058.
For culturally and linguistically diverse (CALD) communities such as the Greek Australian community, dementia presents unique challenges. Cultural perceptions, language barriers, and limited awareness often delay diagnosis and support.
Within the Greek Australian community, where family bonds are deeply valued, dementia can be both a private and isolating journey. Many carers, out of love and duty, shoulder responsibility alone. Yet silence and stigma remain significant barriers, preventing open conversations and access to support.
Efthimia’s Journey
Efthimia, 74, has been caring for her husband George since 2021, when she first noticed subtle changes in his behaviour, like placing a phone in a power socket instead of the charger.
“From small details, I could tell something had changed,” she recalls. After a memory test from their GP, their lives shifted. Together, they adapted routines and learned to navigate a new reality.
For Efthimia, caring for George is not a burden but an extension of their 55-year marriage.
“Even though I am physically tired, I don’t feel tired. I cannot allow someone else to take responsibility for George. We will always be together.”
Their days are filled with garden walks, shopping trips, and quiet moments of connection. George’s gratitude fuels her resilience:
“His kindness moves me. His gratitude kills me, it makes me sad but also keeps me going.”
Efthimia is candid about the stigma she has faced around dementia.
“People do not see dementia as a disease, they see it as something worse. Some avoid us. People should not be scared to talk openly about dementia. It is a disease like any other, and there is help. We are not alone.”
The role of PRONIA’s dementia support services
Through PRONIA’s Stronger Together Dementia Support Services, Efthimia has found education, connection, and empowerment. The program offers centre-based day respite, monthly support groups for carers, weekly telephone support, and case management services, all facilitated by bilingual professionals.
Efthimia attends one of PRONIA’s telephone support groups, conducted in Greek, as well as educational sessions where she learns practical skills, from communication techniques to dining and personal care strategies.
“I learned so many things that help me support George with patience and dignity,” she says.
PRONIA’s work ensures carers like Efthimia are not isolated, but part of a community that understands both the cultural and emotional dimensions of dementia care.
This Dementia Action Week, PRONIA honours both carers like Efthimia and those living with dementia, like George, reminding us that while dementia changes many things, it cannot diminish dignity, hope, and life. Anyone who lives with dementia is still the same person, with dementia.
It is up to all of us to support those living with dementia, their carers, and their families, to ensure they are not left feeling alone. Dementia does not discriminate, it can affect anyone, regardless of age, background, or status.
“Do not be afraid to ask for help. Everything we experience is part of life.”
When: Wednesday, 17 September at 10.30am – 12.30pm
Where: Braybrook Community Hub, 107-139 Churchill Ave, Braybrook. The event is free (light lunch provided).
Bookings: Call (03) 9388 9998 or email dementiasupport@pronia.com.au
*Eva Kladou is a Community Development Worker, PRONIA – Dementia Action Week 2025.